Help Rose Bloom is feeling good.
3 months ago
Today was a tiring but good day for Rose. An early start to travel to The Enable Ireland Centre in Cork accompanied by her big Sister Kate and her Mom Karen. Rose had a consultation with her Neurologist Dr. Niamh Mc Sweeney. This is a regular part of her treatment and monitoring of her SMA (Spinal Muscular Atrophy) condition.This was followed by an appointment with Dr.Pat Kiely, Orthopedic Surgeon who carried out a lengthening of the magnetic rods inserted in her back to correct the curvature on her Spine as a result of Scoliosis which is a side effect of SMA. Thankfully all went very well.Rose and her Family are very grateful and appreciative of her fantastic medical team.Rose is now at home and resting after a busy but positive day. ... See MoreSee Less
Help Rose Bloom is feeling motivated.
3 months ago
The past week has been a very busy one for Rose, she attended the Kerry Garda Centenary Celebrations in Listowel, was interviewed by Deirdre Walsh of Radio Kerry on the Talkabout Show, interviewed by Audrey Reidy for an article in Kerry’s Eye and also attended her Clippity Clop Therapeutic Riding session. All of this along with her weekly Physiotherapy Sessions.Prior to Christmas Rose will undergo a lengthening of the Rod inserted in her back to correct the curvature on her spine as a result of Scoliosis.The week after Christmas Rose will receive her Spinraza Injection to help her fight the effects of SMA (Spinal Muscular Atrophy).Rose’s biggest concern however is making sure she stays on the good side of the Elf in her Class and the Elf at home prior to Santa arriving on Christmas Eve. 🎅🏻🎅🏻🎅🏻www.GoFundMe.com/f/helprosebloomwww.helprosebloom.ie ... See MoreSee Less
Help Rose Bloom is feeling proud.
4 months ago
Rose was delighted to be invited to join her Little Blue Hero Friends and her Garda Colleagues at The Garda Centenary Celebration in Listowel today. Rose joined Garda Commissioner, Drew Harris and many more Gardai at todays events. Thank you to Little Blue Hero’s and An Garda Siochana for making Rose and her big Sister, Kate feel so welcome and involved with such a historic event in Kerry. ... See MoreSee Less
Rose is getting great Therapeutic support from Orla Brosnan and her team at Clippity Clop Therapeutic Horse Riding in Tralee. This therapy has really helped Rose recover her posture following her Scoliosis surgery and her ongoing journey with the effects of SMA (Spinal Muscular Atrophy). This weekly Horse Riding session has been made possible by the generosity of all who contributed to The Help Rose Bloom Fundraising Campaign. ... See MoreSee Less
It has been a hectic week for Rose from Halloween Trick or Treating to a very successful week of Intensive Physiotherapy at Barefoot Physiotherapy in Cork. This intensive therapy is essential to Rose’s mobility and the belief in the possibility of walking in the future.We are so grateful for everyone’s financial support in making this possible and for the love and support Rose receives. We are very proud of Rose’s determination and strength of character rewarded with her Certificate from the wonderful Team at Barefoot Physiotherapy. She never fails to bring a smile to our faces.Tomorrow it’s back to school to see all of her school friends again. ... See MoreSee Less